Saturday, August 1, 2015

Awake

Jenny here. 

Yesterday was Wil's bladder surgery to remove the tumor they found during his cysto. We had been prepared that, after the surgery, he may need a catheter at home anywhere between 3 days to 2 weeks, depending on bladder function. I'm happy to report he peed, a big Facebook announcement last night hehehe, during his recovery room stay.  So he was released without one at all!

His pre-surgery EKG was described as "beautiful."  With all the pieces of his body that want to fall apart on us, I've never questioned the strength of his heart. It IS absolutely beautiful. That is true. 

The surgeon told me they removed a lesion a little bigger than a quarter. No others were found. While it doesn't look to have the classic appearance of bladder cancer, it (my words) looks funky. He said it's better it's been taken out, either way. 

The thing about cancer is that often the treatment that saves you, also puts you at higher risk for other cancers down the road. We know this is the reality. We hope for the best. 

Wil is doing well today, post-op, but not loving the restrictions on activity for the next 2 weeks. He had just felt so much more motivated to move in the last few weeks and now needs to rest. Just last week he had googled and researched household management and how often to do certain chores. One night he organized my shoe rack. And took me on a video tour of the walk-in closet while I was at work. Silly guy. He's also doing all the laundry. And dishes. I'm a kept woman. And he feels great helping our life be that much better by his efforts. So, cutting back now, for the time to heal, is bothering him a little. 

Some have mentioned the wait, for what this tumor could be, being hard. Waiting 2 weeks for results doesn't change life much at this point for us. Even the wait yesterday feels so different than it used to feel. I saw other people around me, in all places of their own process. And I thought, "I'm actually ok.  I've got this. We've been through worse." 

As I watched the opaque glass panels shift above me at the hospital while he was in surgery, reflecting surroundings, I felt a lot of peace. Not the absence of worry or fear or sadness, but peace all the same.  That glass reflected momentary images but it's general properties weren't changed by what was moving around it.  I hope to live, at my core self, this way. 

Sidenote:  I broke down and got a Fitbit too. It's been an interesting biofeedback experience. Yesterday, waiting, my pulse was as low as it is in deep sleep. The peace I felt was real. I've got a graph to prove it!

I often describe our life now as cloaked in the shadow of death. I hope you'll understand that this feeling, the knowledge, the reality, the fragility of life for all of us...it's powerful and, get this, positive. We savor more minutes than we used to and laugh more and hold on to goodness. It's not heavy (most days) unless I add more layers on to it myself...it's just one part of this experience that we have with us, daily. 

Last night Wil said he was so happy to be awake.  He was talking about coming out of anesthesia. Surgery or non surgery day, lately I see this sentiment in his eyes all the time. I saw it over and over again when we had nieces, nephew, and my sisters spending time with us this past week. Through neuropathy pain and limited (but improving!) mobility he walked the Perot Museum, played Just Dance for hours with the kids, cooked breakfast for everyone, drove us to the drive-in theater, and had a blast. 

This man. He loves life and the people who let him in...he doesn't let go praying and trying for those that shut him out either. I think this depth can be scary for some people to be around. Fearless love. That's how I would describe that beautiful heart. It's an amazing thing to experience when you are around him these days.  After the family left he said cancer has really opened his eyes to what matters. There's no time to wait on who and what's important either. 






A friend, who I was talking to about this centered living that comes with the death cloak, sent me the evening gatha they do every night at her temple. 

This. I think this is what I'm trying to articulate.  May we all live our days awake too. 

Much love.  

--------------
Let me respectfully remind you

Life and death are of supreme importance 

Time swiftly passes by and opportunity is lost

Each of us should strive to awaken

Awaken

Take heed 

Do not squander your life

2 comments:

  1. Not the absence of worry or sadness. But peace, all the same.
    Thank you.
    You both are in our heart and prayers.

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    Replies
    1. Janis, your unwavering support keeps me going. Always. JCC

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