If you've spent any amount of time with Wil, you know he is a big, quiet, teddy bear of a person. He has a deep, smooth voice that you will rarely hear roar, and his spirit is so genuine and strong. But his eyes. They have always spoken so much more than he verbalized. They are connected to the core of his being.
He was looking through some photos of the past month and said "my eyes look crazy." It's true. There has been a pained, static intensity in his eyes for weeks. But just looking at him lately...I can see the subtleties in his eyes reappearing.
Wil had a great visit at the doctor today. He strolled in there, sans wheelchair. It was a tiring morning, but he did it! At his first outpatient clinic visit on January 3, 2014, he had to be wheeled in, his O2 dropped scary low after sitting just 30 minutes, he needed oxygen and had to lay down. He couldn't speak much. Today, he sat there waiting, sat and talked to the nurse, then to his doctor. He asked intelligent questions and talked about his feelings. He didn't shake from anxiety. He said "I'm scared" but talked it through. He's tired of me saying it, but I'm amazed by him every day. Happiness.
The results: ALL levels are normal! Bilirubin is at .8 (the aim was for under 1). His oncologist said "are you ready to do this?" Wil, with what looked like tears and fear in those expressive eyes said, "no, but let's get started as soon as possible." Tenacity.
We were able to learn more about his protocol. I will detail it as he actually begins treatment, but it looks less scary to us now. It's still intense, but knowledge is power, right? If it goes well, in a year he could *fingers crossed* possibly return to school part time while finishing chemo another 2 years. This first 6-12 months will be inpatient during the actual treatment days followed by 2 weeks at home to recover, but as time moves on the treatments will space out to monthly. Hope.
She would have admitted him today if he agreed, but we chose 2/18/2014 to begin Chapter 2 of this journey. We want to see some friends, have a movie date, eat some fast food, and lay in bed snuggling with the puppies over the next few days...Things we will put on hold for awhile in a few short days. Tuesday we will be as ready as we can, with bags packed, and wait for the call that they are ready to admit him. Exhale.
I probably won't blog until next week as I will be enjoying a little slice of the heaven here with him. But expect pictures on FB and Twitter :)
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