Tuesday, December 3, 2013

Hello Hallucinations

Just a quick update as requested by Wil.

Everything has been pushed back for now while his liver continues to recover. After several days of worsening jaundice and the onset of hallucinations, it appears the liver function has stopped declining, so we can expect it to start improving now. Until yesterday I had no idea why he had been so disoriented and upset with me about conversations he thought we had....come to find out he also thought he was having more visitors than there were in reality and thinking he had ordered breakfast when he had not...he is aware of it now but still experiencing it from time to time.  His oncologist says that 98% of the time the liver recovers.

Wil was happy to keep down some mashed potatoes and chicken soup tonight.  He also has a new bed that's not so crazy and loud (for those who have visited you know what I mean lol).

The MRI of his tumor/spine and the bone marrow biopsy that was scheduled for today will most likely be tomorrow. We are hoping to see little to no tumor left and less than 5% cancer cells in the marrow. It would be a small, but great step in recovery with the hope to be in remission by the end of the month.

From what we understand, in ALL, remission *hopefully* happens quickly. Then, it's the rest of the chemo treatment that takes years to finish to ensure that every nook and cranny of his marrow is zapped and cleaned out. I've met some great family members up on BMT lately but, gosh, many of them have been up there on/off for months and months. As one family member said, "it's not the ALL that kills, it's everything else" because these brave folks have months to years of compromised immune systems. This man's loved one is battling mouth sores (i.e. trying to not die of an infection while going through month 6 of heavy chemo).  That floor of 18 rooms holds more hope and comfort (ok and, honestly, fast forward fear) than anywhere else for me.

The newest chemo has been pushed to next week, assuming his liver cooperates.  By our count that means we will be ringing in the new year from his hospital room. But I hear we have a great view of the fireworks.  And I'm bringing the champagne for toasting. I couldn't be more excited for a new year.

5 comments:

  1. I'm fighting for u bro! U and Jenny stay strong! Love u both!

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  2. I can only imagine how glad y'all are to get rid of that bed! I thought it was a the positive pressure making all that noise til Wil set me straight.

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  3. God, your body just wants to fight, huh!?!? You channel to your liver, tell it, hey!!, you liver. You need to chill out so we can drop to zero and get this done. Gosh!

    Y'all are in every prayer. I will see you soon :*

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  4. Once he asked for the new bed they had one there within the hour. They reall do their best to take care of them up there! And Wil said he thinks he slept better last night then he had in awhile.

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  5. am praying everyday and then some!! Love you guys:)

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